This Work is Heart Aching & Back Breaking. 

Today’s clinical was both an honor and a tragedy. I cared for a 9 month old with infantile onset Pompe disease. The prognosis for this disease is 12 to 18 months. He had an enlarged heart and liver. His edematous tongue made it impossible for him to swallow so he had an NG (nasogastric) tube for his feedings. His extremities were swollen due to renal failure and fluid accumulation. He couldn’t lift his head when normally at 9 months children sit up without support. He was terminal, he’s dying. His mother visited briefly but can’t stand his situation. She just couldn’t deal with the hand God’s dealt her. I don’t blame her, she feels guilty. Pompe is an autosomal recessive genetic disorder. Both parents were carriers of the gene. With this child his PICC line had gotten infected which led to sepsis and with his current condition his body cannot tolerate infection. This morning I had to weigh him. I changed his diaper. I fed him through his NG tubes and administered his countless medications. And I entertained him. I made him smile and giggle. I wiggled his tiny toes and listened to his heart and lungs with my stethoscope. This morning he was alive. 

  
I feel fortunate to have two healthy children in my household. That’s a fact I will never take for granted. Hold your children a little tighter, kiss them a little more, and love every moment spent with them whole heartedly. You never know for certain. This pediatric nursing situation is heart aching and back breaking. 

For Now. 

During family dinner my son asks me if he can marry me. I explain that he’s already my family and people get married so they can make people that aren’t their family into family. Him and my boyfriends daughter acknowledged that they understood. So I took another bite of the delicious dinner my boyfriend made us. While I was chewing my boyfriends daughter asks if her dad (my boyfriend) and I are going to get married. I choked and coughed. My boyfriends response was, “Would you like us to get married?” Both of the children feverishly agreed. I choked again. I looked at him. He smiled back. That’s the end of that topic, for now. 

Neighborly Love. 

The past few days, while being home in the afternoon, I had someone knock on my door. A small boy around my sons age had asked to play with my son and boyfriends daughter. It turns out it was the son of one of my old friends who lives down the block. She showed up shortly after. We sat and talked for hours while all the kids played. We talked about the struggles of being a single mom mostly but she brought up a topic I didn’t know she realized. Apparently she hung out with my ex during the times he was throwing parties at my house. She told me he was hard to read but he ended up opening up to her. She told me about how it is hard for him to be a father. I understand that and continue to try to work with him. She told me about his confession to her that he felt he did me horribly wrong. I had no idea he felt guilty about what he did. I understand. She also spoke to me about his confession about how unhealthy his relationship with the other woman had gotten. It surprised me to hear this from someone else. She told me he called his girlfriend crazy, which I’ve heard him say repeatedly. No surprise. He had told this mutual friend that his girlfriend even texted another neighbor of ours demanding that she not text “her man” ever again. No surprise there either considering the volitile nature of her jealousy. We talked about how we all continue to talk to my ex because we all have friendships with him. We discussed my unhealthy relationship with him as well. Our old relationships that were unstable and resulted in children. Not everyone gets the happily ever after they originally intended to have. But life compensates for that. She told me she feels like my boyfriend and I are very good for each other and a super cute couple. I blushed. He makes me the happiest I’ve ever been. We discussed being single moms and how the best option for dating men is finding good stable single fathers. It’s very important that our significant others understand our struggle. We talked about how alike our children are and all their differences. We talked about a lot the past few days and it was nice to provide company for ourselves and our children. That’s neighborly love. 

Camping-In. 

Last night I decided to have family time. We get such few fleeting moments together I wanted to make the most of it. So we got the sleeping bags, turned the televisions off, put our phones down, and lit some candles. We got all of our blankets and pillows. The four of us had a camp-in in our living room. We would have hitched the tent but it was raining outside. My boyfriend sang camp songs rather well. His daughter sweetly sang You are my Sunshine, my only Sunshine. We demanded an encore. And then we told stories. We told stories about princesses, queens falling in love with Knights (tall, blue-eyed, manly Knight Daddy), dragons, puppies, baby turtles, and dinosaurs eating a girl named Suzanne (totally my sons idea). Although I am incredibly sore from sleeping on the floor almost the entire night, those moments were priceless. The kids migrated to me and they both fell asleep in my arms. My boyfriend woke me up around five in the morning to cuddle on the couch with him. The couch was still not as comfortable as the bed. I can’t wait to go camping with the kids. Quality time is better than quantities of time. I cherish these moments. I am a family woman. And I can’t wait to one day have more kids. 

Paternal Figures. 

I am fortunate enough to have a lot of father figures in my life. Today’s as well as every other day we should be giving them more credit for what they do. 

Grandpa. 

He’s no longer with us but damn he was a hell of a man. One of the greatest fathers of all time. He had five children, two boys and three girls. He worked as a school bus driver and custodian while his children were in school. Once the youngest (my father) was of working age my grandpa started his own painting/carpentry business. His two sons learned to call him “Boss.” He chose to be there for his children no matter what and by any means be a presence in their lives. He was the same was with his grandkids. We spent our entire summers with him after he retired. He would take us on walks, teach us how to garden, read to us, take us swimming at the local pool, take us to church or running errands. He was a true old-fashion family man. To this day I admire that man. He’s everything I aspire to be. He was so goofy and he loved making people laugh. He was a great man and the best father figure. I love you, to the moon and back. 

Dad. 

I couldn’t even begin to explain the bond I share with my father. I am the epitome of a daddy’s girl. We have VERY similar personalities, passed down to us by my oh so goofy grandpa. Goofy is genetically encoded.  He called me Cookie my entire childhood. Nowadays he just calls me Cook. Raised me and my two sisters as a single father, never remarried after my mother. He is the type to help anyone in need. He has the purest heart. Every father should be exactly like my dad. He taught me so much. Because of him I have a soft spot for single dads. He loved my sisters and myself as individuals but equally. He was always fair and just. He never judged anyone for anything. He was the voice of reason throughout my life. My confidant and best friend. I value him more than he’ll ever know. He’s never led me astray or made me doubt his love for me. He’s an honest man of integrity. The world would be a better place with more people like him in it. I love you dad. 

Boyfriend. 

Where do I begin? First of all, you would do anything for the mother of your child. When she needs you, you’re there. You defend her honor and display undying loyalty. I absolutely adore that about you. I love baby mama, her and I are blessed to get along so well. I think she can tell I’m genuine and knows I get it having had a child of my own. She can see how much I love your child together and that I would do anything for her. Anything from all the times I’ve picked her up from school to the times I wipe the tears from her cheeks. That girl is so lucky to grow up surrounded by so much love. But you, my dear, are absolutely astonishing. You not only live your daughter to pieces but you treat my son as if he is your own. You take on so much responsibility with the kids that I no longer feel like I’m doing it alone, for the first time in forever. You teach them so much, from catching their first fish to riding a bike. They adore you and always reach out to hold your hand. I couldn’t ask for a better teammate and father figure for my son. I never expected anything from you, but you’ve done more than anyone else ever has. I respect you and love you so much darling. 

Step Dad. 

We may have not always seen eye to eye but you had my back. We were very different, in personality and beliefs but we have had some amazing times. You never wanted to see me hurt and always comforted me during hard times. We didn’t have the best relationship but it’s because you never raised daughters, so everything was new to you and you weren’t what we were used to either. I still hope you know that I love all the time I spend with you and mom. I will always be here for you. 

Ex-Husband. 

I may not understand it but I know you somehow love our son. You love him in your own way. He still doesn’t get to see you as much but I tell him you love him everyday. He’s very confused about it still but I try to explain in a way he will understand. You just love him differently. You aren’t a horrible dad, you never really had an example as to how to parent. I remember teaching you how to tie a Windsor knot, something a father ought to teach his son. You know our sons in good hands and I’m completely capable. Your name will never be slandered in this house because you are a part of him. Just try your best and that’s good enough. After healing and looking at the situation rationally I totally understand. No pressure but I hope you have a wonderful Father’s Day. 

Momma’s Boy. 

I love everything about having a son. He looks just like me, has the same personality, and is so curious about the world. He is my little imaginative adventurer and he keeps me on my feet. Today while organizing my lab bag from school he notices my bag of (fake) blood. I utilized it during my lab today to practice blood transfusions. I noticed his curiousity and decided to demonstrate somewhere we could get messy; the kitchen. I hung the bag of NS (normal saline) and the bag of “B Negative” blood. My son and I are so close we share the same blood type so that’s what type of blood we decided on. We transfused it into our patient, Mr. Sink. I’ll be trying to get red food coloring out of his white shirt for a week but every moment was worth it. You don’t know the value of a fleeting moment until you have children. They really do grow before your eyes. I think my son just might be a doctor one day. He’s so amazing. I couldn’t be more proud to call him mine. 

Love at First Sight. 

He’s so smart. The kind of intelligence that’s never ending inquisitive. He asks me so many questions and I never shelter him from philosophy. He has such kind deep eyes. When he looks into mine he stares right into my soul. He told me once, while staring into my eyes that he could see himself in them. At first I believed this statement to be literal. I’ve since believed that he really knows the bond I have with him. He misses me even before I leave. He’s so much a part of my life, my drive and my dedication. He changed my life for the better. He helped me see what the true meaning of life is. He doesn’t know it and I never want him to feel responsible for it but he heals me every day. He doesn’t need that burden and I’d lift any weight off his shoulders. I’d move mountains for him. Cross oceans for him. I’ll work every day of my life to better myself so I can be the best I can be for him. I never want him to change. I don’t ever want him to become weary of the world and miss a single opportunity. I want him to embrace all that life has to offer and always be the first one out on the dance floor. I want him to love fully without fear of heart break. I want him to heal from any disappointments that come his way and forgive all the wrongs done to him. I want him to live a beautiful and wonderful full life. You see, with me it was love at first sight. I loved him before I even knew him. And he calls me mom. 

Like Father, Like His Father. 

My ex saw his son today. During which he spent the entire time on his phone. Father of the year for sure. All because his mother and myself were begging him to fix his sons insurance. Which didn’t get fixed today, of course. And when you ask my ex he made an appointment but it’s a different day every time you ask. No surprise there either. He claims he wants to see his son. Great! Finally after over a month of avoiding him and dodging responsibility. My current boyfriend and the man that actually provides stability for my son disagrees completely with my letting him come and go from our sons life as he pleases. He says that he contributes to his health or well being in no way shape or form. I’m trying to be a good mom but when is enough, enough? My boyfriend makes valid points about my ex and the company he keeps. But I’m torn both ways. Always have been. I’m not the type to ever keep him from his biological father as long as he’s trying. The thing is, he gives up every other month. What is that teaching our son? Daddy only loves me when it’s convenient for him? I’m not good enough for daddy? I’ve heard my son say daddy doesn’t really love me. I’ve heard him disown his biological father to his friends. I will never say anything bad about my ex in front of my son. I remember a time when my mom spoke unfavorably about my dad to me. She didn’t realize that half of me was him. I’m part him. She was speaking badly about me and that broke my heart. I tell him daily that his dad loves and misses him and that he’s just very busy. I’ll make excuses for my ex just to save my sons heart from a few more tears. I know what’s best for my son and no one else can tell me what’s best. I’m a damn good mom and I’m proud of myself for not letting my emotions towards his father get the best of me. But when is enough, enough? Do I let his fathers poor decisions and unloving actions into his life? Do I let him see first hand his dad’s true colors even though it’ll break his heart? I’m afraid there’s no right answer. Everyone in my life including my exs mother warns me. They’re all skeptical of his fathers true intentions and don’t trust him at all. Do I give my ex yet another opportunity to fail? To disappoint? To hurt the one person that means the VERY most to me? Yet again I find myself saying that’s out of my control, I can only do my best. I sleep soundly at night with a guilt free conscious. 

Mom. 

It’s Mothers Day. My moms an amazing woman. Shortly after I graduated high school she was diagnosed with stage two Breast Cancer. When the initial tide of grief passed she made a decision. She decided to live. She fought. She’s a survivor and she did it with a smile on her face. She laughed and cried and healed. After what seemed like an eternity of chemotherapy and radiation that had almost every negative side effect accompanying it, she was told by doctors she was cancer free. She’s been cancer free ever since. My mom raised three girls, while working and going to school to give us the best future she could. She decided to go back again recently and just obtained her Masters Degree in Victimology. Growing up my mom handled it all. She did it with grace and finesse. She worked hard and enjoyed life. She made cancer her bitch. My Mom is a badass. 

One Day. 

I never realized how much being asked a simple question could relentlessly exhaust me. It exhausts me emotionally, mentally, and physically. My response is almost always “I don’t know babe” or “I’m sure he’s busy.” That question is “Where’s my dad, Mom?” It makes me want to scream. The last conversation I had with his dad about our son was his father promising to step up and be a father, “no bullshit.” That must’ve been over two months ago. Why do I always do that to myself? Believe people are generally good and pure and keep their promises, even people who lie and cheat and have broken trillions of promises to me. I believe people can change. Not him, not anymore. My son asks about his biological father occasionally. Every time I see the hurt residing just beneath his deep brown eyes. I feel his pain with him, I love him so much. He’s lost. He feels like he is unworthy of love because he was abandoned by a man who doesn’t deserve him. He is only five years old and he feels unlovable and inadequate all because his biological dad made a choice to not be around. My hearts crushed. No mother ever wants their child to ponder such things or experience such emotions.  My message to the man who hurt my child: 

Dear Absent Father/Ex-Dad, 

Must be nice. To lock up your heart so no one can break it. Keep it buried in your chest. I don’t have that luxury. My heart walks around, eats my cereal, goes to school and calls me mom. He’s a boy, he gets hurt. He scraps his knee on the sidewalk falling from his bike and falls running in the house. He gets hurt occasionally, boys will be boys. But you broke the heart of my heart. You broke our sons heart. I always imagined his first heartache would be rejection by that cute blonde girl who sits two seats in front of him in his science class. I was wrong. His own father broke his heart first. You make me sick. I don’t understand how you could do that to him. I could never do nor fathom your actions and the driving forces behind them. Here I am, cleaning up after you. Gently guiding the small shattered pieces of his heart back in place. You don’t deserve him. He’s strong, smart, kind, gentle, and absolutely amazing. He’s everything you’re not. And you take no responsibility in that, that was all him. One day you’ll wish you would’ve been a better man. Your son is the better man and he will forgive you. He’ll move past the man you tried to create by ditching. He will surpass all statistics about boys with absent father homes. He is one of a kind. And one day, you’ll regret your mistakes.